This page contains a wide variety of resources that you can use to help raise awareness for CVS and to support our charity work. There are also articles on CVS and foreign language support. We hope you find them useful and if you would like to know more please get in touch with us via the contact page.

Help For Schools

Click here to download this guidance document on what schools and colleges should do to help children with medical conditions.

The Care Quality Commission (CQC) has published a document covering issues when a child transitions to adult health care services. It is well worth a look and addresses another problem many CVS families have problems with.


Available in 2 presentations

Plastic sleeve £5 + p&p or in a printed presentation box £6 + p&p

Email to order

The DVD includes interviews with medical advisers discussing diagnosis and treatment of CVS and a documentary on experiences of CVS sufferers, as well as information on our Family Days.


We have produced some information leaflets, with generous support from Children in Need, and we can supply these to people on request. Everyone joining us or enquiring will be sent a pack. If anyone requires more, e.g. to put on display in your local hospital, doctors office etc., please contact a member of the committee. You can download copies below.

Foreign Language Support

You can download CVS brochures and information in different languages by following the links below. They are available in Adobe Acrobat PDF format (Read Only, requires Adobe Acrobat reader, download via this link).

If anyone is kind enough to translate the text to any other languages, we may be able to produce versions in a variety of languages. If you can help please contact us.

Health Record

We are investigating if a health record would be valuable to our members who regularly attend accident and emergency departments. The idea is to keep a record of what has been tried and what works along with some basic information about CVS, to help cut the time needed to explain to A&E staff about CVS. This is a rough draft document we have published to get feedback and ideas. Please take a look and let us know your opinions.

Download health document (pdf format)