About Us
What is CVSA?
CVSA is an all-volunteer charity with no paid workers. We are registered with the charity commission and comply with their requirements including regular updates of our finances.
Site and Charity Info
The information on this site is provided to help you understand CVS and support sufferers but is not intended to replace any advice from your own health care professional.
About CVSA
We are an all volunteer organisation, a registered charity with all funding being provided via the sponsored links on our purchase pages, membership fees and by voluntary donations.
Aims
Our charity constitution states our aims as follows:
1) For the relief of persons suffering from Cyclical Vomiting Syndrome by providing and assisting in the provision of treatment for such persons and by providing and assisting in the provision of advice, information and counselling for such persons and for their parents, families and carers.
2) To advance education in the cause, cure, prevention and relief of Cyclical Vomiting Syndrome and related conditions by promoting medical research and disseminating the useful results of such research.
Financial Information
Our income and spending record is available on the charity commission website, full accounts are presented, and distributed each year at our annual general meeting, or on request from a member unable to attend on the day. Trustees are unpaid and claim only expenses directly related to supporting the work of CVSA UK.
We have three main sources of income:
a) Membership fees and renewal fees
We keep these as low as possible but we have some fixed costs we need to cover, e.g. this website, publication of newsletters and our annual meeting.
Gift Aid contributions can add a significant amount to any fee or donation we receive. See above.
b) Advertising
Our editorial content is not influenced by the funding sources. Our website hosts sponsored ads and links from which the charity earns a small income, 100% of this income is spent on supporting the charities aims. We don’t accept advertising from any adult-orientated material or from advertisers promoting any “treatments” for CVS.
Our website hosts advertising banners only. Advertisement is distinguished by the word ‘Advertisement’
By clicking on a link an advertiser is notified that you purchased after following a link from our site. We receive no personal information at all, the process is anonymous and we do not track you in any way. We earn a small amount from the advertisers profit, (you pay the same price if you order via our site or directly.. This can vary from 0.5-2%. Although small in amount, this can add up and help defray the publication costs we face. Please use our links whenever possible. It’s a really simple way to generate income at no cost to yourself.
c) Donations
Donations from members and organisations, funds raised from sponsored charity activities etc are an important source of income and can be bolstered by Gift Aid too.
General Policy
Privacy
We do not sell or pass on any personal information about our members to any third party. Members can choose to have their information stored as a paper record not electronically if they prefer.
Inclusivity
We do not discriminate on sex, age, race, religious belief, sexual orientation, disability or any other factors. Anyone with an interest in CVS who supports the aims of the charity is welcome.
Medical advice
We have all information we publish checked for accuracy by our medical advisers. We do not provide medical advice, always seek help from your own doctor. We present information about CVS that we hope will be helpful and educate. We do publish sufferers, and parents/carers, own stories, these represent the opinion of the author only and do not necessarily reflect the opinions of CVSA UK or its trustees. Information therein should not be taken as constituting medical advice.
Privacy Policy
We hold data on members for the purposes of sending them newsletters and other charity-related emails. We ask members who in the family has CVS and if the member provides that information we will record that data. We ask members if they would be willing to speak to journalists, and if they agree we will pass their details to a specific journalist for the purposes of a potential article/radio or TV interview. Occasionally we may ask members if they wish to take part in medical research relating to CVS. We will never pass details without asking.
You can ask to be removed from our list at any time and we will completely erase your data. If you wish to see what data we do hold on you please email info@cvsa.org.uk. We never pass or sell your information to any third party without your explicit consent.
Confidentiality
We do not sell or pass on any personal information you may provide us if you contact us to any 3rd party. We maintain a database of membership. Members can request paper records and opt out of the database entry.
Advertising
Our editorial content is not influenced by the funding sources. Our website hosts sponsored ads and links from which the charity earns a small income, 100% of this income is spent on supporting the charities aims. We don’t accept advertising from any adult-orientated material or from advertisers promoting any “treatments” for CVS. Our website hosts advertising banners only. Advertisement is distinguished by the word ‘Advertisement’