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Join CVSA UK

Join us!
£20 membership then annual £10 renewal
 


To get our bi-annual newsletters and help the work of CVSA please download and send in our membership form.
Please consider paying by standing order.

If you are joining us or are making a donation please sign the gift aid section of the membership form. For every £1 a standard rate taxpayer in the UK contributes, we can claim 28p back from the government. It's a simple and trouble free way for you to increase the value of your donation.

Donate

Please make a donation. We run annual meetings, distribute information throughout the year, publish newsletters and maintain this site. It all costs money. We want to move to the next step and start to fund research in the UK. We have already worked in partnership with the North American CVS organisation to fund both research and education. If you are planning a fund raising event - we can provide an official sponsor form, just let us know the details.

No amount is too small. If you wish to contribute please send your cheque made payable to "Cyclical Vomiting Syndrome Association" to:

CVSA UK
77 Wilbury Hills Road
Letchworth
Herts
SG6 4LD

 

Or Donate via PayPal

 


Dept education document

 

Click to download this guidance document on what schools and colleges should do to help children with medical conditions.

 

The Care Quality Commission (CQC) has published a document covering issues when a child transitions to adult health care services. It is well worth a look and addresses another problem many CVS families have problems with.

 

 

DVD

Available in 2 presentations

Plastic sleeve £5 + p&p or in a printed presentation box £6 + p&p

email info@cvsa.org.uk to order

cvs dvd

The DVD includes interviews with medical advisers discussing diagnosis and treatment of CVS and a documentary on experiences of CVS sufferers, as well as information on our Family Days.

 

Articles on CVS by David Fleisher

Pillars of treatment

Empiric Guidelines

CVS in Adults

Opiates in treating CVS


What else can you do to help CVS?

Buy from our partner on-line retailers (Amazon UK. iTunes, Tesco and Namesco).

Every time you buy via these links the CVSA will earn a small amount towards our work.

Please bookmark them and use them. It costs you exactly the same but can really help us.

 

poster1 poster2

Download one of our posters and print it, then ask if you can put it up in your doctors' waiting room, at school, at work, or in your local hospital - anywhere that it might increase public awareness. It's an inexpensive and simple way you can make a real difference. (Click on image to download).

Leaflets

We have produced some information leaflets, with generous support from Children in Need, and we can supply these to people on request. Everyone joining us or enquiring will be sent a pack. If anyone requires more, e.g. to put on display in your local hospital, doctors office etc., please contact a member of the committee. You can download copies below.

leaflets

CVS

Facts about CVS

CVS in School

Nursing Patients with CVS


Foreign Language Support

You can download CVS brochures and information in different languages by following the links below. They are available in Adobe Acrobat PDF format (Read Only, requires Adobe Acrobat reader, download via this link).

Chinese Simplified 
Chinese Traditional 
Danish  
French
German
Italian factsheet & brochure
Japanese
Russian 
Spanish (Latin American) factsheet & brochure

If anyone is kind enough to translate the text to any other languages, we may be able to produce versions in a variety of languages. If you can help please contact us.


Health record draft

We are investigating if a health record would be valuable to our members who regularly attend accident and emergency departments. The idea is to keep a record of what has been tried and what works along with some basic information about CVS, to help cut the time needed to explain to A&E staff about CVS. This is a rough draft document we have published to get feedback and ideas, please take a look and let us know your opinions.

Download draft health document (pdf format)


MP Awareness

Ideally write your own letter to your local MP, and to your MEPs, to inform them about CVS, the problems it causes and about the work of CVSA UK. If you prefer, we have prepared templates that you can use to get you started. These aren't as effective as they are so impersonal, but it is better than nothing at all. Just choose one that suites the software you use and add your name and address and that of the appropriate MP, and that's it- job done. Please let us know who you contact and when, it helps us track the effectiveness, and we can follow up by sending leaflets, brochures and posters or talking to them if required.

Microsoft Word format download

Plain text (should work with almost anything) download

You can find your MP via this link

Or email your MP and MEP via this link

Members in Scotland can find their MSP via this link

For the Welsh National Assembly via this link