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Welcome to CVSA UK

We are a registered charity providing information and support to sufferers of

Cyclical Vomiting Syndrome and their families.

This website is certified by Health On the Net Foundation. Click to verify.

Please remember to update us if your email address changes.

 

 

Support Research into CVS, Here in the UK

Click

Here to donate

 

CVS WEBINAR

Prof Qasim Aziz

Professor of Neurogastroenterology

"My experience and views on CVS"

Recording now available on YouTube


 

RARE BAROMETER

This European organisation needs your help

We would like to invite you to take part in our new survey on the journey to diagnosis for people living with a rare disease.

Take the survey

It should take no more than 20 minutes to complete and closes on 15 June 2022.

Obtaining a diagnosis can be a long and difficult journey for both patients and their families. By asking questions on the support you had, the difficulties you encountered, or on the consequences of being undiagnosed or misdiagnosed, we will be able to better identify how to improve the diagnosis journey of people living with rare diseases.



 

CVS Hoodies

Charlotte White has launched a clothing brand.

She is donating part of the profit on her CVS branded items to the charity. Check them out here.

 

full hoodieblack hoodie

 

Fund Raising

 

Amy

 

 

My name is Amy Bennison.  I am 10 years old and live near York.  I was diagnosed with CVS when I was 3 and I have regular sickness episodes about 5 times a year.  My Grandma is really good at knitting and sewing.  She made loads of handcrafted items throughout the year and had a Christmas stall.  She raised a fabulous £250 for CVSA but not only that, she spread the word about CVS.  Lots of people at the stall were very interested and surprised to hear about CVS.  Well done to my fantastic Grandma.

 


Family Day 2022

Sat. Nov 12th 10-4pm

Put the data in the calendar!

 

 

Webinar

Dr. Osvaldo Borrelli

Gt. Ormond St Hospital for Sick Children

"An introduction to CVS"

Thanks so much to Osvaldo for an excellent presentation. Thanks to all attendees, many excellent questions, we hope everyone got a lot out of it.

Watch the recording here

 

Start Shopping on Amazon Smile and Support CVSA

It is really simple and costs you nothing click on the link below, search for Cyclical Vomiting and choose it, from then on everytime you go to the Amazon site you will be prompted to choose smile and support us, you pay the same price, we don't track purchases or anything else, but we do get a small payment from Amazons profit on the sale.

Smile

 

 


Donate

Evershare

This method has very low admin fees compared to some donation sites.

Scan or click the QR code below to support us via Evershare

everyshare

 

 

Donate Nectar points

Accumulated points you have never used? Don't waste them, donate to us, we pay no fees.

 



Can You Help ?

We need help with the committee, most roles don't take up much time.

PLease let us know if you can spare some time to help us keep CVSA working for all CVS sufferers.

A description of the roles can be found here

 

Please consider sending your story and sharing it in our next Newsletter. We really appreciate your input and our members find hearing others experiences very helpful.

 


 

 

Seen a health claim that's too good to be true? Then Ask for Evidence

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All medical information on this site has been reviewed by our Medical advisors, 
shown below, people's individual stories on our Experiences pages are their own views and 
do not constitute medical advice.

Our site contains advertising links that help support the
charity. Neither the trustees nor any of our medical advsiers benefit in anyway from these
links and have no commercial links to our advertisers.
Dr Sonny Chong Consultant Paediatrician 
Queen Mary’s Hospital, Carshalton, Surrey
Keith J Lindley BSc (Hons) PhD MB MRCP(UK) MRCPCH  
UCL Institute of Child Health, Great Ormond Street Hospital
Dr Ishaq Abu-Arafeh, 
Consultant in Paediatrics and Paediatric Neurology Forth Valley Royal Hospital and the 
Royal Hospital for Sick Children, Glasgow
Dr Alberto Ravelli
Pediatric gastroenterologist and hepatologist Brescia University, Italy

Dr Simon Moodie
Consultant Gastroeneterologist
Epsom & St Helier NHS Trust Surrey


Dr Maureen Lawson
Consultant Paediatric Gastroenterologist
Great Northern Children's Hospital Newcastle

Osvaldo Borrelli MD PhD
Consultant In Paediatric Gastroenterology
Head of Department of Paediatric Gastroenterology
Division of Neurogastroenterology & Motility
Hon. Senior Lecturer in Paediatric Gastroenterology
University College of London (UCL) 
Great Ormond Street Hospital for Sick Children
 

About CVSA

The information on this site is provided to help you understand CVS and support sufferers
but is not intended to replace any advice from your own health care professional.
Confidentiality
We do not sell or pass on any personal information you may provide us if you contact us to
any 3rd party. We maintain a database of membership, members can request paper records are 
kept and opt out of the database entry.
About CVSA
We are an all volunteer organisation, a registered charity with all funding being provided 
via the sponsored links on our purchase pages, membership fees and by voluntary donations.
Advertising
Our editorial content is not influenced by the funding sources. Our website hosts
sponsored ads and links from which the charity earns a small income, 100% of this income
is spent on supporting the charities aims. We don't accept advertising from any 
adult-orientated material or from advertisers promoting any "treatments" for CVS.
Our website hosts advertising banners only. Advertisement is distinguished by the
word ‘Advertisement’

  

Privacy Policy

We hold data on members for the purposes of sending them newsletters and other charity-related emails. We ask  members who in the family has CVS and if the member provides that information we will record that data. We ask members if they would be willing to speak to journalists, and if they agree we will pass their details to a specific journalist for the purposes of a potential article/radio or TV interview. Occasionally we may ask members if they wish to take part in medical research relating to CVS. We will never pass details without asking.

You can ask to be removed from our list at any time and we will completely erase your data.  If you wish to see what data we do hold on you please email info@cvsa.org.uk. We never pass or sell your information to any third party without your explicit consent.

 

  

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