Cyclical Vomiting Syndrome Association UK
Welcome to CVSA UK
We are a registered charity providing information and support to sufferers of
Cyclical Vomiting Syndrome and their families.
Please remember to update us if your email address changes.
Support Research into CVS, Here in the UK
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CVS WEBINAR
Prof Qasim Aziz
Professor of Neurogastroenterology
"My experience and views on CVS"
Recording now available on YouTube
RARE BAROMETER
This European organisation needs your help
We would like to invite you to take part in our new survey on the journey to diagnosis for people living with a rare disease.
It should take no more than 20 minutes to complete and closes on 15 June 2022.
Obtaining a diagnosis can be a long and difficult journey for both patients and their families. By asking questions on the support you had, the difficulties you encountered, or on the consequences of being undiagnosed or misdiagnosed, we will be able to better identify how to improve the diagnosis journey of people living with rare diseases.
CVS Hoodies
Charlotte White has launched a clothing brand.
She is donating part of the profit on her CVS branded items to the charity. Check them out here.
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Fund Raising
My name is Amy Bennison. I am 10 years old and live near York. I was diagnosed with CVS when I was 3 and I have regular sickness episodes about 5 times a year. My Grandma is really good at knitting and sewing. She made loads of handcrafted items throughout the year and had a Christmas stall. She raised a fabulous £250 for CVSA but not only that, she spread the word about CVS. Lots of people at the stall were very interested and surprised to hear about CVS. Well done to my fantastic Grandma.
Family Day 2022
Sat. Nov 12th 10-4pm
Put the data in the calendar!
Webinar
Dr. Osvaldo Borrelli
Gt. Ormond St Hospital for Sick Children
"An introduction to CVS"
Thanks so much to Osvaldo for an excellent presentation. Thanks to all attendees, many excellent questions, we hope everyone got a lot out of it.
Watch the recording here
Start Shopping on Amazon Smile and Support CVSA
It is really simple and costs you nothing click on the link below, search for Cyclical Vomiting and choose it, from then on everytime you go to the Amazon site you will be prompted to choose smile and support us, you pay the same price, we don't track purchases or anything else, but we do get a small payment from Amazons profit on the sale.
Smile
Donate
Evershare
This method has very low admin fees compared to some donation sites.
Scan or click the QR code below to support us via Evershare
Donate Nectar points
Accumulated points you have never used? Don't waste them, donate to us, we pay no fees.
Can You Help ?
We need help with the committee, most roles don't take up much time.
PLease let us know if you can spare some time to help us keep CVSA working for all CVS sufferers.
A description of the roles can be found here
Please consider sending your story and sharing it in our next Newsletter. We really appreciate your input and our members find hearing others experiences very helpful.
Seen a health claim that's too good to be true? Then Ask for Evidence
All medical information on this site has been reviewed by our Medical advisors, shown below, people's individual stories on our Experiences pages are their own views and do not constitute medical advice. Our site contains advertising links that help support the charity. Neither the trustees nor any of our medical advsiers benefit in anyway from these links and have no commercial links to our advertisers.
Dr Sonny Chong Consultant Paediatrician Queen Mary’s Hospital, Carshalton, Surrey
Keith J Lindley BSc (Hons) PhD MB MRCP(UK) MRCPCH UCL Institute of Child Health, Great Ormond Street Hospital
Dr Ishaq Abu-Arafeh, Consultant in Paediatrics and Paediatric Neurology Forth Valley Royal Hospital and the Royal Hospital for Sick Children, Glasgow
Dr Alberto Ravelli Pediatric gastroenterologist and hepatologist Brescia University, Italy Dr Simon Moodie Consultant Gastroeneterologist Epsom & St Helier NHS Trust Surrey Dr Maureen Lawson Consultant Paediatric Gastroenterologist Great Northern Children's Hospital Newcastle
The information on this site is provided to help you understand CVS and support sufferers but is not intended to replace any advice from your own health care professional.
Confidentiality
We do not sell or pass on any personal information you may provide us if you contact us to any 3rd party. We maintain a database of membership, members can request paper records are kept and opt out of the database entry.
About CVSA
We are an all volunteer organisation, a registered charity with all funding being provided via the sponsored links on our purchase pages, membership fees and by voluntary donations.
Advertising
Our editorial content is not influenced by the funding sources. Our website hosts sponsored ads and links from which the charity earns a small income, 100% of this income is spent on supporting the charities aims. We don't accept advertising from any adult-orientated material or from advertisers promoting any "treatments" for CVS.
Our website hosts advertising banners only. Advertisement is distinguished by the word ‘Advertisement’
Privacy Policy
We hold data on members for the purposes of sending them newsletters and other charity-related emails. We ask members who in the family has CVS and if the member provides that information we will record that data. We ask members if they would be willing to speak to journalists, and if they agree we will pass their details to a specific journalist for the purposes of a potential article/radio or TV interview. Occasionally we may ask members if they wish to take part in medical research relating to CVS. We will never pass details without asking.
You can ask to be removed from our list at any time and we will completely erase your data. If you wish to see what data we do hold on you please email info@cvsa.org.uk. We never pass or sell your information to any third party without your explicit consent.
This site complies with the HONcode standard for trustworthy health information:
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| Email info@cvsa.org.uk Page updated: 17-mar-22 |  |
Helpline 0151 342 1660 |
Charity Number 1045723