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What is CVS?





Adult CVS







Family Day



Welcome to CVSA UK

We are a registered charity providing information and support to sufferers of

Cyclical Vomiting Syndrome and their families.

This website is certified by Health On the Net Foundation. Click to verify.



Please remember to update us if your email address changes.

Family Day 2018

Saturday 10th November

Birmingham Children's Hospital

Put it in the diary now - all welcome - free to attend - free creche

10am - 4pm

Prof. Paul L.R. Andrews

Emeritus, Professor Comparative Physiology, St George’s
University of London, London, U.K.

“Where do anti-emetics come from?”

Dr. Osvaldo Borrelli

Head of Clinical Service, Consultant Paediatric Gastroenterologist, Great Ormond Street Hospital for Sick Children.
Honorary Senior Lecturer - Institute of Child Health, University College
London U.K.

“What do the new Rome IV criteria mean for CVS
diagnosis and treatment?”



Dr Richard Boles


How Genetic Testing and Knowledge Lead to Improved Treatments in CVS 
Wed, Oct 17, 2018 4:30 PM - 5:30 PM EDT 

Please join my meeting from your computer, tablet or smartphone. 

Access Code: 865-606-669 

First GoToMeeting? Let's do a quick system check: 


Supporting CVS

Grace Carmichael is raising funds for CVS by taking part in a Fun Run in Glasgow. Please support her and ask your friends and family to do the same

You can sponsor her here

Jo Hughes is walking the 46miles from Ediburgh to Glasgow to raise funds for CVSA.

You can sponsor her here

Nick Carlton is doing a skydive in support of CVSA UK.

You can sponsor him here


Cook Book to Support CVSA

Bindu Kejriwal has written a cook book and is donating profits to CVSA.

"After my son had been diagnosed and successfully treated, I decided that I wanted to do something to help the organisation that had helped us in our hour of need."

Please email me if you would like to buy a copy. As my costs should now be more than covered by pre-orders, the entire proceeds from all future sales will go to CVSA.


So far Bindu has raised an amazing £1500 - thanks so much!


Cook Book


Awareness Day page

Thank you to everyone who contributed to last year's Awareness day.

We hope all the CVS societies and supporters around the world had a great day and that we have started something that can only grow and grow and help more and more people.

Have you got your T shirt yet?

Fruit of the Loom brand, heavy cotton. Order from the Awareness page

tshirt close up

Organising an event? We now have a MyDonate page where you can collect funds online, link below - its simple to set up and all money raised comes to the charity- no fees applied.


Can You Help ?

We need help with the committee, most roles don't take up much time.

PLease let us know if you can spare some time to help us keep CVSA working for all CVS sufferers.

A description of the roles can be found here




Listen to Dr Sonny Chong on Radio 4

Inside Health

or on catch up

sonny and mark porter



Please consider sending your story and sharing it in our next Newsletter. We really appreciate your input and our members find hearing others experiences very helpful.


Buy Trolley Coins/Keyrings Ribbons and Wristbands to support CVSA

T-shirts can be ordered now! In Stock

see our Awareness Day page

trolley cvs ribbon


New: CVSA eBook available on the Apple iBook store for Mac, iPad and iPhone- free

ebook image


CVS Voices

Take a look at our new video



The methods below are just soem of the ways you cna contribute. These methods have very low admin fees compared to some donation sites. If you plan a sponsored event the BT myDonate is a great way to help us.


Text Donations to CVSA UK

Just text CVSA10 £XX where X is an amount £2, £5 or £10 to 70070

Click the logo below to support us via GoFund Me



We hear of many sufferers who don't think they are being treated seriously, and struggle to get diagnosis or treatment. Some people have their jobs at risk due to what appears to their employer to be unexplained absences. Parents face the same issue with schoools, when a child has not got a diagnossis they recognise.

Thanks to a member for providing links to some useful resources:

Carers UK

As the UK's only national membership charity for carers, Carers UK is both a supportive community and a movement for change.

For the past 50 years we've been driven by carers raising their voices together to call for change and seek recognition and support.


 A charity that provides information, advocacy and advice services across England, offering direct and local support via Professionals and Volunteers.

NHS Complaints Advocacy

Our advocacy service is a free and confidential service available to anyone who wants support to make a complaint to the NHS.


Seen a health claim that's too good to be true? Then Ask for Evidence

Ask for evidence logo

All medical information on this site has been reviewed by our Medical advisors, 
shown below, people's individual stories on our Experiences pages are their own views and 
do not constitute medical advice.

Our site contains advertising links that help support the
charity. Neither the trustees nor any of our medical advsiers benefit in anyway from these
links and have no commercial links to our advertisers.
Dr Sonny Chong Consultant Paediatrician 
Queen Mary’s Hospital, Carshalton, Surrey
Keith J Lindley BSc (Hons) PhD MB MRCP(UK) MRCPCH  
UCL Institute of Child Health, Great Ormond Street Hospital
Dr Ishaq Abu-Arafeh, 
Consultant in Paediatrics and Paediatric Neurology Forth Valley Royal Hospital and the 
Royal Hospital for Sick Children, Glasgow
Dr Alberto Ravelli
Pediatric gastroenterologist and hepatologist Brescia University, Italy

Dr Simon Moodie
Consultant Gastroeneterologist
Epsom & St Helier NHS Trust Surrey

Dr Krishnappa Venkatesh 
Consultant Paediatric Gastroenterologist
Alder Hey Children's Hospital Liverpool

Dr Maureen Lawson
Consultant Paediatric Gastroenterologist
Great Northern Children's Hospital Newcastle

About CVSA

The information on this site is provided to help you understand CVS and support sufferers
but is not intended to replace any advice from your own health care professional.
We do not sell or pass on any personal information you may provide us if you contact us to
any 3rd party. We maintain a database of membership, members can request paper records are 
kept and opt out of the database entry.
About CVSA
We are an all volunteer organisation, a registered charity with all funding being provided 
via the sponsored links on our purchase pages, membership fees and by voluntary donations.
Our editorial content is not influenced by the funding sources. Our website hosts
sponsored ads and links from which the charity earns a small income, 100% of this income
is spent on supporting the charities aims. We don't accept advertising from any 
adult-orientated material or from advertisers promoting any "treatments" for CVS.
Our website hosts advertising banners only. Advertisement is distinguished by the
word ‘Advertisement’


Privacy Policy

We hold data on members for the purposes of sending them newsletters and other charity-related emails. We ask  members who in the family has CVS and if the member provides that information we will record that data. We ask members if they would be willing to speak to journalists, and if they agree we will pass their details to a specific journalist for the purposes of a potential article/radio or TV interview. Occasionally we may ask members if they wish to take part in medical research relating to CVS. We will never pass details without asking.

You can ask to be removed from our list at any time and we will completely erase your data.  If you wish to see what data we do hold on you please email We never pass or sell your information to any third party without your explicit consent.



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